Kidney disease knowledge among new patients referred to a hospital nephrology outpatient department

Abstract

Aim: To determine knowledge about kidney disease among new patients referred to a nephrology clinic. Background: Knowledge about kidney disease among the general population is poor. There are no studies assessing patients understanding of chronic kidney disease (CKD) when first referred to a nephrology clinic. Methods: Newly referred patients to a nephrology outpatient department were invited to participate. Data included demographics, risk factors for CKD, and patient understanding of causes, symptoms, and management. Results: 106 patients were surveyed. Mean age was 64 +/- 15 years, 53% female and mean BMI 29.5 +/- 6.3. Prevalence of risk factors for CKD included 47% current or former smokers, 34% diabetic, 67% hypertension, 15% family history of CKD, and 2% Aboriginal or Torres Strait Islander. Patient CKD stage was 0 (8%), 1 (24%), 2 (14%), 3 (36%), 4 (17%), 5 (1%). 51% were secondary school educated. 80% were referred by their general practitioner (GP) and 25% had seen a nephrologist previously. 3% were familiar with Kidney Health Australia. 19% were uncertain why they had been referred. CKD causes identified were unknown (39%), alcohol (30%), hypertension (22%), and diabetes (19%). Symptoms identified included asymptomatic (23%), kidney pain (15%) and dysuria (11%). Management suggested was uncertain (51%), dialysis (33%) and anti hypertensives (22%). 82% reported unsatisfactory education from their GP. Conclusions: New patients referred to a renal outpatient department had poor knowledge about kidney disease. Education of patients should begin with the G.P. prior to referral. For most patients, education programmes need to be targeted at a simplistic level.<br />